Facio to discover FSHD clinical outcome measures based on real-world data

Tuesday, March 19, 2019

Facio Therapies announced that it entered an agreement with the Centre for Human Drug Research (CHDR; Leiden, the Netherlands) on a study aimed at discovering FSHD clinical outcome measures based on real-world patient data obtained with the use of digital technologies. This exploratory study, which is co-financed by Facio and CHDR and will be conducted with the co-operation of the group of leading FSHD clinician, Prof. Baziel van Engelen (Nijmegen, the Netherlands), represents the very first effort in the FSHD field to evaluate the utility of real-world data for monitoring disease progression and response to treatment. Read more

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